Addressing Current Deficits in Patient Education Materials Through Crowdsourcing

Author:

Hung Ya-Ching1,Chaker Sara C.2,Sigel Matthew3,Saad Mariam1,Yu-Hsuan Chang Monal4,Slater Elizabeth D.1

Affiliation:

1. Department of General Surgery, Sinai Hospital of Baltimore, Baltimore, MD

2. Department of Plastic Surgery, Vanderbilt University Medical Center

3. Vanderbilt University, Nashville, TN

4. Medical Imaging Department, National Taiwan University Hospital, Taipei, Taiwan.

Abstract

Background Patient education materials are commonly reported to be difficult to understand. Objectives We aimed to use crowdsourcing to improve patient education materials at our institution. Methods This was a department-wide quality improvement project to increase organizational health literacy. There are 6 phases of this pilot study: (1) evaluating preexisting patient education materials, (2) evaluating online patient education materials at the society (the American Society of Plastic Surgeon) and government level (Medline Plus), (3) redesigning our patient education material and reevaluating the education material, (4) crowdsourcing to evaluate understandability of the new patient education material, (5) data analysis, and (6) incorporating crowdsourcing suggestions to the patient education material. Results Breast-related patient education materials are not easy to read at the institution level, the society level, and the government level. Our new implant-based breast reconstruction patient education material is easy to read as demonstrated by the crowdsourcing evaluation. More than 90% of the participants reported our material is “very easy to understand” or “easy to understand.” The crowdsourcing process took 1.5 days, with 700 workers responding to the survey. The total cost was $9. After incorporating participants' feedback into the finalized material, the readability of the material is at the recommended reading level. The material also had the recommended length (between 400 and 800 words). Discussion Our study demonstrated a pathway for clinicians to efficiently obtain a large amount of feedback to improve patient education materials. Crowdsourcing is an effective tool to improve organizational health literacy.

Publisher

Ovid Technologies (Wolters Kluwer Health)

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