Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions-Reference-Cited by-同舟云学术

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Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions

Published:2018-10 Issue:Suppl 1 Volume:56 Page:S16-S21
ISSN:0025-7079
Container-title:Medical Care
language:en
Short-container-title:

Author:

Nowell W. Benjamin,Curtis Jeffrey R.,Crow-Hercher Rachelle

Publisher

Ovid Technologies (Wolters Kluwer Health)

Subject

Public Health, Environmental and Occupational Health

Reference7 articles.

1. Research governance: where did it come from, what does it mean?;Shaw;J R Soc Med,2005

2. Enhancing stewardship of community-engaged research through governance;Oetzel;Am J Public Health,2015

3. Comparative effectiveness research: a report from the Institute of Medicine;Sox;Ann Intern Med,2009

4. Charting a path from comparative effectiveness funding to improved patient-centered health care;Conway;JAMA,2010

5. A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research;Concannon;J Gen Intern Med,2014

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1. Wearable activity tracker study exploring rheumatoid arthritis patients’ disease activity using patient-reported outcome measures, clinical measures, and biometric sensor data (the wear study);Contemporary Clinical Trials Communications;2024-04

2. Lessons learned in measuring patient engagement in a Canada-wide childhood disability network;Research Involvement and Engagement;2024-02-07

3. Understanding Heterogeneity in Patients’ Conceptualisation of Treatment for Rheumatoid Arthritis: A Cluster Analysis;BMJ Open;2023-09

4. Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks;Patient Related Outcome Measures;2023-06

5. Patient engagement in a national research network: barriers, facilitators, and impacts;Research Involvement and Engagement;2023-03-08

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