Listening to the Voice of the Patient in RSV Research

Author:

Lee Andrew W.1ORCID,Thomas Rachael2,Chung Bowen3,Bont Louis J.45

Affiliation:

1. From the University Medical Center, Utrecht, The Netherlands

2. The University of Cumbria, Carlisle, United Kingdom

3. University of California Los Angeles, Los Angeles, California

4. Department of Pediatrics, University Medical Center Utrecht, Utrecht

5. ReSViNET (Respiratory Syncytial Virus Foundation), Zeist, The Netherlands.

Abstract

Patient and public involvement in research refers to patients or caregivers with disease experience contributing to the design, conduct or dissemination of results from research. Patient and public involvement has given rise to new fields in healthcare-oriented research and has the potential to transform infectious diseases through interventional trials. Our recommendations and best practices from years of organizing respiratory syncytial virus parent networks are provided.

Publisher

Ovid Technologies (Wolters Kluwer Health)

Reference7 articles.

1. What Would It Mean for Scientists to Listen to Patients? The New Yorker.;Bedard

2. Impact of patient and public involvement on enrolment and retention in clinical trials: systematic review and meta-analysis.;Crocker;BMJ,2018

3. UK Standards for Public Involvement.,2019

4. The prevalence of patient engagement in published trials: a systematic review.;Fergusson;Res Involv Engagem,2018

5. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research.;Staniszewska;BMJ,2017

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