Reframing the Care of Children With Epidermolysis Bullosa Through the Lens of Medical Trauma
Author:
Publisher
Ovid Technologies (Wolters Kluwer Health)
Subject
Advanced and Specialized Nursing
Reference40 articles.
1. The psychosocial impact of chronic wounds on patients with severe epidermolysis bullosa;Journal of Wound Care,2012
2. A survey of epidermolysis bullosa care in the United States and Canada;Pediatric Dermatology,2014
3. Factors that support the use of child-parent psychotherapy as an intervention for child–parent dyads exposed to pediatric medical traumatic stress;Clinical Social Work Journal,2017
4. Epidermolysis bullosa: An insider's perspective to a rare genetic connective tissue disorder;Journal of the Dermatology Nurses' Association,2016
5. Inherited epidermolysis bullosa: Clinical and therapeutic aspects;Anais Brasileiros de Dermatologia,2013
Cited by 4 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa;Orphanet Journal of Rare Diseases;2023-09-04
2. Patients’ and parents’ experiences during wound care of epidermolysis bullosa from a dyadic perspective: a survey study;Orphanet Journal of Rare Diseases;2022-08-13
3. Epidermolysis Bullosa: A case study in Cyprus and the nursing care plan;International Journal of Nursing Knowledge;2022-03-18
4. Reducing anxiety and preventing trauma in pediatric epidermolysis bullosa;Pediatric Dermatology;2022-03
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