The lived experience of military beneficiaries with amputations at the hip and pelvic level

Author:

Spinuzza Nicholas12,McHugh Terrence R.123,Garland Jared S.123,Roddy William T.123,Hewitt Melissa A.123,Harrington Colin J.4ORCID,Thaper Akshay123,Reini Josh123,Smith Douglas G.123,Pasquina Paul F.12

Affiliation:

1. Department of Physical Medicine and Rehabilitation, The Center for Rehabilitation Sciences Research, Uniformed Services University of Health Sciences, Bethesda, MD

2. Department of Rehabilitation, Walter Reed National Military Medical Center, Bethesda, MD

3. The Henry M. Jackson Foundation for the Advancement of Military Medicine, Bethesda, MD

4. Department of Orthopaedic Surgery, Walter Reed National Military Medical Center, Bethesda, MD

Abstract

Background: Hip- and pelvic-level amputations are devastating injuries that drastically alter patient function and quality of life. This study examined the experience of military beneficiaries with a hip- or pelvic-level amputation to better characterize their challenges and specific needs and to optimize treatment in the future. Methods: We conducted a retrospective review of the Military Health System and identified 118 patients with a history of one or more amputation(s) at the hip or pelvic level between October 2001 and September 2017. Surviving participants (n = 97) were mailed a letter which explained the details of the study and requested participation in a telephonic interview. A total of six individuals (one female, five males) participated in structured interviews. Results: The study group included four participants with hip disarticulations and two participants with hemipelvectomies (one internal, one external). All six participants reported significant challenges with activities related to prosthetic use, mobility, residual limb health, pain, gastrointestinal and genitourinary function, psychiatric health, and sexual function. Conclusions: These interviews highlight the unique needs of individuals with hip- and pelvic-level amputations and may improve access to higher echelons of care that would enhance the function and quality of life for these participants.

Funder

Henry M. Jackson Foundation

Publisher

Ovid Technologies (Wolters Kluwer Health)

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