Power to the People : Participant Ownership of Clinical Trial Data-Reference-Cited by-同舟云学术

Power to the People : Participant Ownership of Clinical Trial Data

Published:2011-02-09 Issue:69 Volume:3 Page:
ISSN:1946-6234
Container-title:Science Translational Medicine
language:en
Short-container-title:Sci. Transl. Med.

Author:

Terry Sharon F.¹,Terry Patrick F.²

Affiliation:

1. President and CEO, Genetic Alliance, Washington, DC 20008, USA.

2. Principal, Scientia Advisors, Cambridge, MA 02142, USA.

Abstract

The time has come to crowd-source data for diagnostic and therapeutics development.

Publisher

American Association for the Advancement of Science (AAAS)

Subject

General Medicine

Reference18 articles.

1. S. Friend Canadian scientists must promote a culture of data sharing to promote innovation. Paper presented at Capturing Innovation for the Public Good www.gairdner.org/2009events/capturinginnovationforthepublicgoodreport. 15 September 2010 Toronto Canada.

2. National Cancer Institute Doctors patients face different barriers to clinical trials (2010). www.cancer.gov/clinicaltrials/developments/doctors-barriers0401.

3. The Path to Personalized Medicine

4. R. English Y. Lebovitz R. Griffin Transforming Clinical Research in the United States (Institute of Medicine of the National Academies Washington DC 2010). www.iom.edu/Reports/2010/Transforming-Clinical-Research-in-the-United-States.aspx.

5. PatientsLikeMe (2010). www.patientslikeme.com.

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