Research Practice and Participant Preferences: The Growing Gulf-Reference-Cited by-同舟云学术

Research Practice and Participant Preferences: The Growing Gulf

Published:2011-01-21 Issue:6015 Volume:331 Page:287-288
ISSN:0036-8075
Container-title:Science
language:en
Short-container-title:Science

Author:

Trinidad S. B.¹,Fullerton S. M.¹,Ludman E. J.²,Jarvik G. P.³,Larson E. B.²,Burke W.¹

Affiliation:

1. Department of Bioethics and Humanities, University of Washington, Seattle, WA 98185, USA.

2. Group Health Research Institute, Seattle, WA 98101, USA.

3. Department of Medicine, Division of Medical Genetics, University of Washington, Seattle, WA 98195, USA.

Abstract

Reframing research practice to align with participant interests is important for ensuring long-term success of genomic investigation.

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference33 articles.

1. Harmon A., New York Times, 25 April 2010, p. WK1.

2. Harmon A., New York Times, 22 April 2010, p. A1.

3. Order Granting Motion to Dismiss Bearder v. Minnesota No. 27-CV-09-5615 (D. Minn. 2009).

4. Storing B. C. babies' blood violates privacy: Group CBC News 12 May 2010; www.cbc.ca/canada/british-columbia/story/2010/05/12/bc-infant-blood-samples-privacy-violations.html.

5. Driver C. MailOnline 24 May 2010; www.dailymail.co.uk/news/article-1280891/NHS-creates-secret-database-babies-blood-samples-parental-consent.html.

Cited by 80 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Data sharing: The public's perspective;Genomic Data Sharing;2023

2. Social and scientific motivations to move beyond groups in allele frequencies: The TOPMed experience;The American Journal of Human Genetics;2022-09

3. What do participants think of our research practices? An examination of behavioural psychology participants' preferences;Royal Society Open Science;2022-04

4. Communicating Precision Medicine Research: Multidisciplinary Teams and Diverse Communities;Public Health Genomics;2022

5. Utility and Diversity: Challenges for Genomic Medicine;Annual Review of Genomics and Human Genetics;2021-08-31