Identifiability in Genomic Research

Author:

Lowrance William W.1,Collins Francis S.2

Affiliation:

1. W. W. Lowrance is a consultant in health research policy and ethics, 72 rue de St. Jean, CH-1201 Geneva, Switzerland;

2. F. S. Collins is director, U.S. National Human Genome Research Institute, Bethesda, MD 20892-2152 USA;

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference25 articles.

1. “Federal policy for the protection of human subjects ” 45 Code of Federal Regulations (CFR) §46 (2005); www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.htm.

2. Department of Health and Human Services “Medical privacy: National standards to protect the privacy of personal health information”; www.hhs.gov/ocr/hipaa.

3. National Institutes of Health “Protecting personal health information in research: Understanding the HIPAA Privacy Rule”; http://privacyruleandresearch.nih.gov/pr_02.asp.

4. Congressional Research Service “Federal protection for human research subjects: An analysis of the Common Rule and its interactions with FDA regulations and the HIPAA privacy rule” (2005); www.fas.org/sgp/crs/misc/RL32909.pdf.

5. European Commission Data Protection in the European Union (EU) www.ec.europa.eu/justice_home/fsj/privacy.

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