Genetic Discrimination and Health Insurance: An Urgent Need for Reform

Author:

Hudson Kathy L.1,Rothenberg Karen H.2,Andrews Lori B.3,Kahn Mary Jo Ellis4,Collins Francis S.5

Affiliation:

1. K. L. Hudson is assistant director for Policy Coordination, National Center for Human Genome Research, National Institutes of Health (NIH).

2. K. H. Rothenberg is Marjorie Cook Professor of Law and director of the Law and Health Care Program, University of Maryland School of Law, and member of the National Action Plan on Breast Cancer (NAPBC).

3. L. B. Andrews is chair of the NIH-Department of Energy Working Group on Ethical, Legal, and Social Implications and professor at Chicago-Kent College of Law.

4. M. J. Ellis Kahn represents the Virginia Breast Cancer Foundation and the National Breast Cancer Coalition, and is co-chair of the Hereditary Susceptibility Working Group, NAPBC.

5. F. S. Collins is director of the National Center for Human Genome Research, NIH, and co-chair of the Hereditary Susceptibility Working Group, NAPBC. Genetic information has begun to have a profound effect on health care. In the Policy Forum by K. Hudson et al., representatives of the National Institutes of Health-Department of Energy Working Group on Ethical, Legal, and Social Implications of the Human Genome Project and the National Action Plan on Breast Cancer discuss the potential for genetic...

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference8 articles.

1. Genetic information and health insurance: Report of the task force on genetic information and insurance (1993).

2. Employee Benefit Research Institute Special Report SR-28 (1995).

3. ANDREWS L, MED GENETICS LEGAL F (1987).

4. DISCRIMINATION AS A CONSEQUENCE OF GENETIC TESTING;BILLINGS P.R.;AMERICAN JOURNAL OF HUMAN GENETICS,1992

5. GENETIC-LINKAGE ANALYSIS IN FAMILIAL BREAST AND OVARIAN-CANCER - RESULTS FROM 214 FAMILIES;EASTON D.F.;AMERICAN JOURNAL OF HUMAN GENETICS,1993

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