Exploring the experiences of family caregivers of stroke survivors in Burkina Faso: A qualitative study protocol

Abstract

Background: Stroke survivors in sub-Saharan Africa frequently require continuous assistance from their relatives for daily activities and personal hygiene care. In Burkina Faso, the experiences of these caregivers are not documented. Purpose: This protocol describes a study that aims to explore in-depth the experiences of the family caregivers of stroke survivors in this region in order to better understanding the real impacts of caregiving on their overall lives. Methods: A convenience sample of twenty family caregivers recruited from both urban and semi-urban regions will be used to conduct a qualitative study. Participants will take part in individual semi-structured online interviews using an interview guide pre-designed by the authors. The interviews will be recorded and transcribed verbatim. The data will then undergo abductive thematic analysis guided by the International Classification of Functioning, Disability, and Health (ICF) framework. Expected results: Four main potential themes could eventually emerge. 1) Health and well-being of family caregivers (e.g., physical, psychological, and social impacts, health management, conflicts, and priorities); 2) Balancing caregiving responsibilities and personal life (e.g., daily caregiving management and the impact of caregiving role on social participation); 3) Impact of environment on the caregiving role (e.g., social and physical environment factors); 4) Personal experience and perceptions of the caregiving role (e.g., self-assessment as a caregiver, expectations and needs). Conclusions: To the best of our knowledge, this will be the first study of its kind conducted in this country. Therefore, it will make a substantial contribution to stroke research in sub-Saharan Africa, specifically in Burkina Faso. Ethical approval: This study was approved by the Research Ethics Committee of the Burkina Faso Ministry of Health (No: 2023-07-183). It will be conducted following the prescribed guidelines respecting the confidentiality of participants.