TwinsUK COVID-19 personal experience questionnaire (CoPE): wave 1 data capture April-May 2020

Abstract

TwinsUK is a population-based study which consists of 14,575 adult twins at present (55% monozygotic and 43% dizygotic) who are between 18 to 101 years of age from around the United Kingdom (UK). In response to the coronavirus disease 2019 (COVID-19) pandemic and the resulting UK ‘lockdown’ restrictions, our team developed the TwinsUK COVID-19 personal experience (CoPE) questionnaire. To date the CoPE questionnaire has been implemented three times, once during the first lockdown (April-May 2020), once as the restrictions eased (July-August 2020) and another when we entered the second wave of the pandemic and stricter restrictions were put into place (October-November 2020). This data note details the sample characteristics, and response rates of the data collected during the initial lockdown phase (wave 1) using the CoPE questionnaire. This questionnaire was designed to capture a variety of social, behavioural, psychological, environmental and health factors. It includes both measures that have been collected previously in TwinsUK as well as new measures. This data can be combined with pre-pandemic TwinsUK data and biological and genetic data. TwinsUK will also soon be complemented with the availability of linked health records. All TwinsUK data is available upon request and details are provided on how to access the data below.