Abstract
Purpose:
The purpose of this qualitative research was to express those with Lived Experience(s) (LE) of Eating Disorder(s) (ED) and look at themes related to ED illness and the shared LEs. This review describes key themes of: ‘Stigma, Shame, and Guilt’, the symptoms and aetiology of EDs.
Design/Methodology:
Exploring a thematic analysis approach, the use of explored themes and the collection of rich data in capturing (two online bloggers) LEs of EDs. Using digital forums to search for written, accessible blogs related to those with LEs of EDs. Blog content and specific search terms were used as part of the preliminary selection process.
Findings:
Revealing significant feelings of ‘stigma, shame, and guilt’ with Anorexia and Bulimia, although two online bloggers shared their experiences, little was divulged about their inner emotions. There were positives for healthcare professionals who can learn about ED LEs. Moving forward any intervention must deal with these emotions in addition to the ED itself to gain a better understanding of living with the disorder. Future longitudinal studies focusing on psychodynamic themes and other shared risks could help enrich the understanding of EDs aetiology.
Originality:
This review relates to a surge of shame in EDs and the need to focus research on healthcare experiences and active health intervention, particularly in developed countries within the West. The value of EDs LEs described in the study themes of: ‘Stigma, Shame, and Guilt’ and their manifestations, coupled with a variety of biopsychosocial issues and the aetiology of EDs.