General practitioners’ perspectives regarding early developmental surveillance for autism within the Australian primary healthcare setting: A qualitative study

Author:

Barbaro Josephine1,Winata Teresa2,Gilbert Melissa1,Nair Radhika1,Khan Feroza2,Lucien Abbie2,Islam Raisa2,Masi Anne2,Diaz Antonio Mendoza2,Dissanayake Cheryl1,Karlov Lisa2,Descallar Joseph3,Eastwood John4,Hasan Iqbal2,Jalaludin Bin2,Kohlhoff Jane2,Liaw Siaw-Teng2,Lingam Raghu2,Ong Natalie4,Tam Chun Wah Michael2,Woolfenden Susan2,Eapen Valsamma2

Affiliation:

1. La Trobe University

2. University of New South Wales

3. Ingham Institute for Applied Medical Research

4. University of Sydney

Abstract

Abstract Background:Significant challenges remain in the early identification of child developmental conditions in the community. Implementing supports and services early in the life course has been shown to promote positive developmental outcomes for children at high likelihood of developmental conditions including autism. As part of a cluster randomised controlled trial, this study seeks to examine and compare the perspectives and experiences of Australian general practitioners (GPs) in relation to a digital developmental surveillance program for autism and usual care pathway, in general practice clinics. Methods:A qualitative research methodology (semi-structured interviews and thematic analysis) was utilised in this study. All GPs from South Western Sydney (NSW) and Melbourne (Victoria) who participated in the main program (“GP Surveillance for Autism”) were invited to the interview. GPs who provided consent were interviewed either over online or in-person meeting. Interviews were audio-recorded, transcribed, and coded using NVivo12 software.Inductive interpretive approach was adopted and data were analysed thematically. Results:Twenty-three GPs across the two sites (NSW: n=11; Victoria: n=12) agreed to be interviewed; data saturation had reached following this number of participants. Inductive thematic coding and analysis yielded nine major themes and highlighted common enablers such as the role of GPs in early identification and intervention, enhanced communication between clinicians/professionals, relationship-building with patients, and having standardised screening tools. Specific facilitators to the feasibility and acceptability of a digital screening program for the early identification of developmental conditions, including the early signs of autism, and encouraging research and education for GPs. However, several practical and socioeconomic barriers were identified, in addition to limited knowledge and uptake of child developmental screening tools as well as COVID-19 lockdown impacts. Common and specific recommendations involve supporting GPs in developmental/paediatrics training, streamlined screening process, and funding and resources in the primary healthcare services. Conclusions: The study highlighted the need for practice and policy changes, including further training of GPs alongside sufficient time to complete developmental checks and appropriate financial remuneration through a Medicare billing item. Further research is needed on implementation and scale up of a national surveillance program for early identification of developmental conditions including autism.

Publisher

Research Square Platform LLC

Reference52 articles.

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