Affiliation:
1. Monash University
2. The University of Sydney
3. NICE: National Institute for Health and Care Excellence
4. Case Western Reserve University
5. Danish Health Authority: Sundhedsstyrelsen
6. University of Calgary
7. World Health Organisation: World Health Organization
8. Kennisinstituut van Medisch Specialisten
9. Stroke Foundation Australia
10. Queen Elizabeth Hospital
11. The Health Foundation
Abstract
Abstract
Objective
To describe experiences of collaborations in producing living guidelines by the Australian Living Evidence Consortium (ALEC), the World Health Organization (WHO), the National Institute for Health and Care Excellence (NICE), the Danish Health Authority (DHA), the Knowledge Institute of the Dutch Association of Medical Specialists, and the Canadian Rheumatology Association (CRA).
Methods
We developed a survey to collect the experiences of the collaborations in living guidelines. We collated the results and conducted a quantitative analysis for closed-ended survey questions. For open-ended questions we conducted a content analysis from the survey content.
Results
We included a convenience sample of twelve participants, from six living guideline collaborations across seven organisations. The consolidated results of the quantitative and content analyses were organized in the following themes: 1) facilitators of successful living collaboration, 2) barriers to successful living collaboration, 3) living influence on collaboration, 4) deciding to collaborate, 5) establishing mechanisms of collaboration, 6) communication and coordination of the collaboration, 7) sharing information, 8) publication, authorship, and recognition, and 9) evaluation.
Conclusion
The living guidelines collaborations were developed informally and are still ongoing. They resulted in successful coordination of key parts of the guideline process, including sharing of searches for evidence, data extractions and evidence summaries. Future living guidelines collaborations could benefit from early initiation and discussion of data sharing requirements, agreement of shared goals and questions, and regular evaluations.
Publisher
Research Square Platform LLC
Reference35 articles.
1. Graham RM, Miller Wolman M. D., Clinical practice guidelines we can trust. 2011, Institute of Medicine.Committee on Standards for Developing Trustworthy Clinical Practice Guidelines.
2. A Framework for the Development of Living Practice Guidelines in Health Care;Mikati IK;Ann Intern Med,2022
3. The UpPriority tool was developed to guide the prioritization of clinical guideline questions for updating;Sanabria AJ;J Clin Epidemiol,2020
4. Cheyne S et al. Methods for Living Guidelines: Early Guidance based on practical experience. Paper 1: Introduction.Journal of Clinical Epidemiology.
5. Cheyne S et al. Methods for Living Guidelines: Early Guidance based on practical experience. Paper 3: Selecting and prioritising questions for living guidelines.Journal of Clinical Epidemiology.