Inflammatory bowel disease perception among Chinese patients: Development and Validation of a knowledge questionnaire

Abstract

Abstract A good understanding of the disease facilitates patient-centered management. We aimed to develop and validate a new questionnaire to assess inflammatory bowel disease (IBD)-related knowledge, and to analyze the related factors affecting their knowledge of IBD. We invited 15 experts to develop and modify the IBD knowledge questionnaire, and 709 patients to test the reliability and validity of the questionnaire, and analyze the factors related to the disease knowledge of patients with IBD. Internal consistency: Cronbach's α coefficients of the total, UC, and CD knowledge questionnaire were 0.886, 0.89, and 0.886 respectively. Cross-item consistency, the Spearman-Brown split coefficients of the total, UC, and CD knowledge questionnaire were 0.843, 0.812, and 0.812 respectively. Time consistency, the test-retest reliability ICC was 0.862 (P < 0.001). The correlation R between the researcher score and the IBD-KNOW score and the original questionnaire score was greater than 0.7 (P < 0.001). Multiple linear regression demonstrated that disease type, age, body mass index (BMI), education level, income, treatment cost, duration of disease, and frequency of visits were related factors that affected IBD patients' disease knowledge (P < 0.05). The IBD Knowledge questionnaire has good reliability and validity, and can therefore be used to assess patient knowledge of the disease.