Concealing bad news: clinicians’ lived experience of a cultural dilemma

Author:

Holmes Sophie Nilusha1,Forbes Karen2,Illing Jan3

Affiliation:

1. Newcastle University Medicine Malaysia

2. University of Bristol

3. Royal College of Surgeons in Ireland

Abstract

Abstract Introduction When asked to conceal bad news from patients, clinicians face a professional dilemma. In many geographical settings, patients’ relatives commonly ask doctors to hide serious diagnoses. Although well-intentioned, the practice is known to create suffering, impacting on the patient, their caregivers and the healthcare team. Our study deepens existing understanding through uncovering clinicians’ lived experience, with the goal of informing training to tackle this professional challenge. Methods Recognising that this practice varies significantly internationally, we recruited clinicians who had experienced two cultures: medical students receiving a UK curriculum, in Malaysia and the UK, and UK-based international medical graduates (IMGs). Twenty-six medical students and sixteen IMGs participated. Drawing on phenomenology, we used focus groups and semi-structured interviews. Results For our participants, concealing diagnoses created three major sources of suffering: moral discomfort, dilemma and powerlessness. Sympathetic distress at the impact on the patient was marked. However, conflicting personal values created uncertainty, in part rooted in misplaced fear that diagnostic disclosure may harm the patient. Even when our participants wanted to disclose bad news, feeling under-equipped for communication challenges and facing coercion, they experienced a sense of powerlessness. Discussion The crucial initial step is for medical education to acknowledge that requests to conceal bad news happen. We need to provide a communication strategy for tackling this phenomenon, which upholds the patient’s right to knowledge while maintaining collaboration and trust with the family. Above all, this dilemma highlights the need for globalised education to revitalise medical ethics, expanding cultural humility and curriculum decolonisation.

Publisher

Research Square Platform LLC

Reference47 articles.

1. An ethnography of managing emotions when talking about life-threatening illness;Ayers NE;International Nursing Review,2017

2. Beauchamp, T. L., & Childress, J. F. (1979). Principles of biomedical ethics. Oxford University Press.

3. Collusion in palliative care;Beng KS;Malaysian Family Physician,2006

4. Conceptual frameworks to illuminate and magnify;Bordage G;Medical Education,2009

5. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology in Qualitative research in psychology. 3(2): 77–101.

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3