Affiliation:
1. Oregon Health & Science University
2. Doernbecher Children's Hospital
Abstract
Abstract
Background
Pediatric patients with moderate and great complexity congenital heart disease (CHD) may benefit from coordinated transfer to adult congenital heart disease (ACHD) centers to reduce the risk of complications; however, there are a variety of transfer practices. We examined the impact of referral order placement at the last pediatric cardiology visit on time to transfer to an ACHD center.
Methods
We analyzed data collected from pediatric patients with moderate and great complexity CHD who were eligible to transfer to our tertiary center’s accredited ACHD center. We examined transfer outcomes and time-to-transfer between those with a referral order placed at the last pediatric cardiology visit and those without using Cox proportional hazards modeling.
Results
The sample (n = 65) was 44.6% female and mean age at study start was 19.5 years (± 2.2). Referral orders were placed for 32.3% of patients at the last pediatric cardiology visit. Those who had a referral order placed at the last visit had significantly higher number of successful transfers to the ACHD center compared to those who did not (95% vs 25%, p < 0.001). In a Cox regression model, placement of a referral order at the last pediatric cardiology visit was associated significantly with a sooner time to transfer (HR 6.0; 95% CI 2.2–16.2, p > 0.001), adjusting for age, sex, complexity, living location, and pediatric cardiology visit location.
Conclusions
Placement of a referral order at the last pediatric cardiology visit may improve transfer occurrence and time to transfer to accredited ACHD centers.
Publisher
Research Square Platform LLC
Reference30 articles.
1. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines;Stout KK;Circulation,2019
2. Supporting the health care transition from adolescence to adulthood in the medical home;White PH;Pediatrics,2018
3. Psychosocial outcomes of children and adolescents with severe congenital heart defect: a systematic review and meta-analysis;Abda A;Journal of Pediatric Psychology,2019
4. Psychiatric disorders and function in adolescents with d-transposition of the great arteries;DeMaso DR;The Journal of pediatrics,2014
5. Kovacs, A.H., et al., Psychological outcomes and interventions for individuals with congenital heart disease: a scientific statement from the American Heart Association. Circulation: Cardiovascular Quality and Outcomes, 2022. 15(8): p. e000110.