Piloting a Minimum Data Set (MDS) in English care homes: a qualitative study of professional perspectives on implementation and data use

Author:

Carroll Rachael E1,Smith Nick2,Palmer Sinead ER2,Burton Jennifer Kirsty3,Gordon Adam Lee1,Towers Ann-Marie2,Rand Stacey E2,Tracey Freya4,Killett Anne5,Webster Lucy2,Hanratty Barbara6,Spilsbury Karen7,Akdur Gizdem8,De Corte Kaat4,Meyer Julienne E9,Goodman Claire8

Affiliation:

1. University of Nottingham

2. University of Kent

3. University of Glasgow

4. The Health Foundation

5. University of East Anglia

6. Newcastle University

7. University of Leeds

8. University of Hertfordshire

9. National Care Forum

Abstract

Abstract

Background digitalisation within English care homes offers potential to make more effective use of substantial data collected by staff during care planning and recording. A pilot minimum data set (MDS) was co-designed with stakeholders based on two digital care records (DCRs) with additional structured measures.Objectives to explore care home staff opinions and experiences of collecting structured measures of quality of life (QoL), cognition and function for residents and how MDS data might be used by staff and other professionals interested in care homes.Design: focus groups (FGs) and interviewsSetting: three Integrated Care System (ICS) regions of EnglandSubjects: care home staff and ICS participantsMethods online FGs and interviews using a semi-structured topic guide. Data collection involved two waves of care home FGs, following MDS data capture, and one with ICS participants. Reflexive thematic analysis was used to develop themes.Results twenty-four staff from 22 homes and 16 staff from 15 homes participated in wave one and two FGs respectively. Ten ICS participants from two of three regions participated. Three themes were developed: the care home context and the importance of an MDS for care, appropriateness and relevance of QoL measures to resident care, and data quality and purpose.Conclusions it is feasible for staff to collect structured measures on resident QoL, function and cognition using DCRs to contribute to an MDS. The data generated can inform and enhance resident care. However, implementation is an evolving process requiring support, trust-building and confidence among those collecting and interpreting data.

Publisher

Research Square Platform LLC

Reference53 articles.

1. Hanratty B, Wolters AT, Towers AM, Spilsbury K, Meyer J, Killett A et al. Data Collection in Care Homes for Older Adults: A National Survey in England. Journal of Long-Term Care. 2023:288 – 96.

2. Developing a care home data platform in Scotland: a mixed methods study of data routinely collected in care homes;Shenkin SD;Age Ageing,2022

3. Covid-19 and lack of linked datasets for care homes;Hanratty B;BMJ,2020

4. Making the investment count: revision of the Minimum Data Set for nursing homes, MDS 3.0;Saliba D;J Am Med Dir Assoc,2012

5. Reliability of the interRAI suite of assessment instruments: a 12-country study of an integrated health information system;Hirdes JP;BMC Health Serv Res,2008

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