Affiliation:
1. University of Rwanda
2. African Research and Community Health Initiative
3. University of Toronto
Abstract
Abstract
Background
Home care for childhood cancer has recently gained acceptance in Sub-Saharan African countries including Rwanda. Home care may have positive implications for patients and their families, but it may also be burdensome to the caregivers. Little is known about the parents’ experience with home care in childhood cancer in Africa.
The purpose of the study
This study aimed to explore the experience and coping strategies of parents regarding home care of children diagnosed with cancer in Rwanda.
Methods
This study was qualitative using a phenomenological design. Ten participants (four key informant interviews and a focus group of six participants) participated who were parents of children diagnosed with cancer. Data were transcribed from audiotaped interviews, codes assigned to the content, and themes generated through thematic analysis using the Hycner version.
Results
The study revealed negative experiences regarding challenges, and individual coping strategies of parents regarding home care. Identified themes concerning experience were Feeling helpless, knowing that giving home care was laborious, feeling overwhelmed, feeling inadequate, and feeling uncertain. Identified themes concerning coping were Reliance on spirituality to cope, Balancing my emotions, Getting my mind off the current situation, Keeping life as normal as possible, Rebalancing life, and Finding and accepting support from family and friends.
Conclusion
Childhood cancer is emotionally, physically, and psychologically draining for parents. However, the challenges experienced enabled the parents to discover personal strategies to cope with the demands of home care.
Publisher
Research Square Platform LLC
Reference27 articles.
1. GBD 2019 Cancer Risk Factors Collaborators. The global burden of cancer attributable to risk factors, 2010–19: a systematic analysis for the Global Burden of Disease Study 2019. Lancet [Internet]. 2019;400(10352):563–91. Available from: https://doi.org/10.1016/S0140-6736(22)01438-6
2. The Lancet Child & Adolescent Health. Tackling childhood cancer in sub-Saharan Africa. Lancet Child Adolesc Heal [Internet]. 2022;6(7):445. Available from: http://dx.doi.org/10.1016/S2352-4642(22)00161-4
3. World Health Organization. CureAll framework: WHO Global Initiative for Childhood Cancer. Increasing access, advancing quality, saving lives [Internet]. CureAll framework: WHO global initiative for childhood cancer: increasing access, advancing quality, saving lives. Geneva. ; 2021. 1–109 p. Available from: https://apps.who.int/iris/handle/10665/347370
4. Steliarova-Foucher E, Colombet M, Ries LAG, Moreno F, Dolya A, Bray F et al. International incidence of childhood cancer, 2001–10: a population-based registry study. Lancet Oncol [Internet]. 2017;18(6):719–31. Available from: http://dx.doi.org/10.1016/S1470-2045(17)30186-9
5. Robison LL, Hudson MM. Survivors of childhood and adolescent cancer: life-long risks and responsibilities. [Internet]. Vol. 14, Nature reviews. Cancer. 2014. p. 61–70. Available from: https://doi.org/10.1038/nrc3634