A survey-based study of adolescents and their healthcare providers in a tertiary pediatric hospital

Abstract

Abstract Background: Adolescents admitted to hospital face challenges beyond their immediate medical condition(s), and are often looked after by healthcare providers who may not fully appreciate this population’s unique health needs. This single-center study explores the experiences of adolescents and their healthcare providers in a general pediatric inpatient setting, with hopes of bridging some of these care gaps. Methods: ​​We designed a cross-sectional survey-based study of two participant groups: (1) Adolescent patients (aged 10-19) admitted to general medical wards at a tertiary pediatric hospital and (2) Pediatric healthcare providers representing multiple disciplines. Results: 25 adolescents completed the survey (mean age 14.6; range 11-17). Most adolescents reported consistently being treated respectfully (88%) and taken seriously (92%) by their care providers. Several identified structure and routine, a break from daily stressors, and quality time with loved ones as positive aspects to hospitalization. Cited areas for improvement included use of correct gender pronouns, having more quiet and privacy, having similar-age roommates, and age-appropriate leisure activities. Healthcare providers (n=40) representing a range of disciplines participated. Most (82%) described caring for adolescents as enjoyable and many (87%) reported that they forged therapeutic connections with their patients. Providers noted several areas of discomfort, particularly with history-taking and/or counseling around gender identity, sexuality, body image, substance use, and suicidality. Identified care gaps included inadequate training/education, suboptimal ward environments, and lack of community resources. Conclusions: This study identified unique strengths and opportunities for improvement in adolescent inpatient care. Hospital environments should recognize adolescent patients’ needs for privacy and offer age-appropriate leisure activities. Healthcare providers would benefit from youth-centred education for improved communication around gender, sexuality, and mental health.