Addressing the gap for racially diverse research involvement: the King’s Model for Minority Ethnic Research Participant Recruitment

Author:

Chaudhuri K Ray1,Podlewska Aleksandra1,Lau Yue Hui2,Gonde Chris2,McIntosh Alysha3,Qamar Mubasher A3,O’Donoghue Simon3,Larcombe Karen1,Adeeko Maria1,Gupta Atul2,Bajwah Sabrina1,Lafond Sarah3,Awogbemila Olabisi3,Coller Riaan van4,Murtagh Ann-Marie5,Ocloo Josephine Enyoam5

Affiliation:

1. King’s College London

2. King’s College Hospital, NHS Trust Foundation

3. King’s College Hospital NHS Foundation Trust and National Institute for Health Research (NIHR) Applied Research Collaboration South London (NIHR ARC South London, At King’s College Hospital NHS Foundation Trust

4. University of Pretoria

5. National Institute for Health and Care Research (NIHR) Applied Research Collaboration South, NIHR ARC South London, At King’s College Hospital NHS Foundation Trust

Abstract

Abstract Background Ethnic minorities (EM) are still underrepresented in research recruitment. Despite wide literature outlining the barriers, enablers and recommendations for driving inclusion and diversity in research, there is still little evidence for successful diversity in research participation, which has a direct impact on the quality of care provided to ethnically diverse individuals. Methods In the light of the Covid-19 pandemic and the key public health need to address the disparity in care provided to non-white populations, we applied the recommendations made by Ocloo and Matthews (2016) on diverse engagement in PPI groups to promote inclusive research recruitment. Results Our results demonstrate a significantly higher recruitment of EM populations to studies, when compared to recruitment in years 2017–2020. Conclusions Enriched by additional recommendations based on our experiences during the Covid-19 research recruitment drive, we propose the King’s Model is used to support ethnically diverse research recruitment. Further evidence is needed to replicate our findings, although this preliminary evidence provides granular details necessary to address the key unmet need of validating clinical research outcomes in non-white populations.

Publisher

Research Square Platform LLC

Reference20 articles.

1. Black D. Inequalities in health: report/​ of a research working group. 1980.

2. Principles for research on ethnicity and health: the Leeds Consensus Statement;Mir G;Eur J Public Health,2013

3. Royal College of Physicians. :Research for all. In.; 2016.

4. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement;Ocloo J;BMJ Qual Saf,2016

5. Barriers to participation in mental health research: are there specific gender, ethnicity and age related barriers?;Woodall A;BMC Psychiatry,2010

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