Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study

Author:

Lagerin Annica1,Melin-Johansson Christina2,Holmberg Bodil3,Godskesen Tove4,Hjort Elin1,Junehag Lena2,Hagelin Carina Lundh1,Ozanne Anneli5,Sundelöf Johan6,Udo Camilla7

Affiliation:

1. Marie Cedershiöld, University, Department of Health Care Sciences

2. Mid Sweden University, Department of Health Care Sciences/Nursing,

3. Linnéus University, Department of Health and Caring Sciences,

4. Nord University, Faculty of Nursing and Health Sciences, Bodø, Norway

5. Gothenburg University, Institute of Health and Care Sciences, Sahlgrenska Academy, Gothenburg, Sweden

6. Uppsala University Hospital, Department of Immunology, Genetics and Pathology

7. Dalarna University, Department of Health and Welfare

Abstract

Abstract Background Communication is central to implementing palliative care (PC) and effective interdisciplinary team functioning. Communication about existential issues is often urgent in PC, yet interdisciplinary teams frequently lack the time and education to meet these communication needs. Thus, more knowledge of existential conversations in different PC contexts is required. Aim This study aimed to gain an in-depth understanding of healthcare professionals’ (HCPs) experiences of existential conversations with patients with PC needs and their next-of-kin by generating a theoretical model. Method Seven focus-group interviews that included 26 HCPs who worked with PC patients in different care settings were carried out in 2020 and 2022. The grounded theory method was used to analyse and compare data from the interview transcripts. Results The HCPs’ primary concern in daily work was establishing a trusting relationship, a prerequisite for enabling existential conversations with a person with PC needs and/or their next-of-kin. The main concern was characterised by the core category maintaining presence and four categories describing interdisciplinary strategies that the HCPs used to achieve a trusting relationship and enable existential conversations in the late phase of life. Several potential barriers also hindered existential conversations. The theoretical model ‘meaningful existential conversations in PC’ was constructed. Conclusions The interdisciplinary strategies used to establish existential conversations, the potential barriers to these conversations and the model we present can be used as a basis for reflection in professional collaborative learning in PC, as a tool for teachers in educational PC programmes and as a guide for HCPs in PC.

Publisher

Research Square Platform LLC

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4. Fact sheet: Palliative care [Internet]. World Health Organization. ; 2020 August 5. Available from: https://www.who.int/news-room/fact-sheets/detail/palliative-care.

5. Socialstyrelsen [National Board of Health and Welfare]. Palliativ vård i livets slutskede: sammanfattning med förbättringsområden [Palliative care at the end-of-life: Summary and improvement area]. 2016. 86 pp. Report number: 2016-12-3. Available from: https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/nationella-riktlinjer/2016-12-3.pdf.

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