Affiliation:
1. University of Worcester
Abstract
Abstract
Background
In the UK there is a post-diagnostic support gap experienced by people affected by dementia. Effective post-diagnostic support interventions, therefore, need to be replicated at scale to meet demand. Reporting an intervention is key to this process because it can support the translation of research into routine practice. Describing the intervention is a key area of reporting recommended when developing, implementing, and evaluating complex health interventions. The objective of this study was to systematically report a novel county-wide approach for scaling the Meeting Centre intervention for people living with dementia and their unpaid carers.
Methods
An adapted version of the Template for Intervention Description and Replication (TIDieR) checklist was used to describe the programme. Adaptations were made to consider items specific to complex social interventions and scaling programmes. Key programme stakeholders contributed to its development.
Results
The adapted TIDieR checklist was an effective way to systematically report essential reporting criteria for the complex scaling programme. Criteria included the components and sub-components, how these were adaptatively implemented, and the modifications made because of complexity.
Discussion
Key findings suggest essential features of the intervention may not be feasible at scale; highlight the critical role of the programme leader to drive culture and systems change; and emphasise the use of scaling science frameworks to determine optimal scale.
Conclusions
This research reported the programme’s development and implementation that can aid the process of translating evidence into routine practice. Further research and theory development should include testing implementation outcomes so that we can understand if the intervention is a scalable solution to the gap in the post-diagnostic support for people affected by dementia.
Publisher
Research Square Platform LLC
Reference105 articles.
1. Peters DH, Tran NT, Adam T. Implementation research in health: a practical guide. World Health Organization; 2013. p. 67.
2. Alzheimer’s Society, Peter Sowerby Foundation. Left to Cope Alone: The unmet support needs after a dementia diagnosis. 2022.
3. Alzheimer’s Society, Peter Sowerby Foundation. From diagnosis to end of life: the lived experiences of dementia care and support. 2020.
4. Watson J, Wilcockson J, Houston A, van Wyk A, Keyes S, Murphy D et al. ‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support. Dementia [Internet]. 2023 Jul 27 [cited 2023 Aug 1]; Available from: https://journals.sagepub.com/doi/full/10.1177/14713012231190775.
5. Marmot M, Allen J, Boyce T, Goldblatt P, Morrison J et al. Michael Marmot by,. HEALTH EQUITY IN ENGLAND: THE MARMOT REVIEW 10 YEARS ON. Vol. 10. 2020.