Stakeholder Perceptions of Dementia in Colombia: A Qualitative Study

Author:

Barragan Alejandra Guerrero1,Cuesta Diego Ivan Lucumi2

Affiliation:

1. Global Brain Health Institute

2. Universidad de los Andes

Abstract

Abstract Background: The global rise in dementia prevalence poses a significant public health challenge, particularly in low- and middle-income countries where resources for diagnosis, treatment, and support are constrained. Addressing this issue, the World Health Organization’s 2017-2025 global action plan on dementia envisions a future where dementia is preventable, and individuals with dementia and their caregivers receive dignified support. Methods: Employing a qualitative research design, this study explores stakeholder perspectives on dementia in Colombia, framed by the World Health Organization's global action plan. Semi-structured interviews were conducted with 12 key stakeholders, representing academia, government, and the community. Data were analyzed using framework analysis. Results: The interviews revealed a lack of recognition and prioritization of dementia as a public health concern in Colombia. Stakeholders expressed consensus on several challenges, including inadequate community awareness, persistent stigma, insufficient services across care levels, a lack of education for healthcare professionals, and a deficit in research characterizing the dementia population. Paradoxically, participants noted a positive trend, indicating growing awareness among both scientific and non-scientific populations. Conclusions: Dementia must urgently be recognized as a public health priority in Colombia. The identified barriers underscore the struggles faced by individuals with dementia and their families, emphasizing the critical need for increased community and governmental awareness.

Publisher

Research Square Platform LLC

Reference67 articles.

1. World Health Organization. The Epidemiology and Impact of Dementia. World Health Organization; 2018.

2. Pradilla AG, Vesga A, BE, León-Sarmiento FE. Estudio neuroepidemiológico nacional (EPINEURO) colombiano. Revista Panamericana de Salud Pública; 2003.

3. Prevalencia de deterioro cognitivo y demencia en mayores de 65 años en una población urbana colombiana;Díaz R;Acta Neurológica Colombiana,2013

4. Prevalence of dementia in Colombian populations;Vargas EA;Dement e Neuropsychologia,2014

5. Quiroz YT, Ospina-Lopera P, Torres VL, Fuller JT, Saldarriaga A, Piedrahita F, et al. Dementia Diagnosis, Treatment, and Care in Colombia, South America. Caring for Latinxs with Dementia in a Globalized World. New York, NY: Springer New York; 2020. pp. 333–43.

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