The experience of young stroke survivors: An interpretative phenomenological study

Abstract

Abstract Background: While stroke is becoming increasingly prevalent in young people (<65 years), diagnosis, treatment, rehabilitation, and management continue to reflect the needs of older people. Health services are not accommodating young stroke survivors' distinct needs, trajectories, preferences, and risk factors. Objectives: The purpose of this study was to characterise and appreciate the experience of young stroke survivors. Methods: Qualitative in-depth semi-structured interviews were conducted with 11 stroke survivors aged between 18 and 49 (via virtual conferencing software). Interview data were analysed using interpretative phenomenological analysis. Results: Young stroke survivors experience a sense of alienation when healthcare providers imply their stroke is an anomaly and are surrounded by elderly patients in stroke units. Alienation and additional emotional concerns, coupled with memory and communication difficulties, compromised survivors’ sense of agency. Many participants also developed and exhibited resilience, gratitude, and acceptance, preserving their mental health. Conclusions: The experience of young stroke survivors is distinct. By considering the unique trajectory of young stroke survivors, health services will be better able to facilitate the rehabilitation of this population.