Experiences of Family Caregivers in Dealing with Cases of Advanced Breast Cancer: A Qualitative Study of the Sociocultural Context in Punjab, Pakistan

Abstract

Abstract Background Among patients with advanced breast cancer, constant help and support are required from family caregivers. However, caregivers themselves go through a difficult situation. Much of the experiences is influenced by sociocultural factors. Thus, this study aimed at exploring the experiences of family caregivers of advanced breast cancer patients. Methods We collected data through in-depth interviews from fifteen family caregivers of advanced breast cancer patients in three major cities of Punjab province in Pakistan. Data was analyzed by using thematic analysis. Results The study identified that experiences of family caregivers are built in the sociocultural context. Poor knowledge, financial constraints and sociocultural factors determined caregiving pressure, which may lead to stressful situations. Socially constructed values exert a pressure on the caregiver and limits the choice for medical consultation. The preference to consult spiritual healers is also an outcome of these culturally built mindset of caregivers. However, religion is also used as a mechanism to cope with stress. They may result in the delayed decision-making of seeking treatment for the patients. Conclusions Family caregivers are important stakeholders in timely treatment decision of advanced breast cancer patients. In order to reduce delays in treatment of patients and reduce the stress of caregiver, it is important to address the sociocultural barriers of seeking care. A tailored approach needs to be incorporated for the management of breast cancer early diagnosis on the basis of sociocultural and religious factors and practices.