Forward with Dementia: process evaluation of an Australian campaign to improve post-diagnostic support

Author:

Low Lee-Fay1,Gresham Meredith2,Phillipson Lyn3,Jeon Yun-Hee1,Hall Danika3,Tan Amy Chen Wee1,Wong Nora1,Brodaty Henry2

Affiliation:

1. Faculty of Medicine and Health, The University of Sydney

2. Centre for Healthy Brain Ageing, Discipline of Psychiatry and Mental Health, UNSW Sydney

3. School of Health and Society, Faculty of the Arts, Social Sciences and Humanities, University of Wollongong

Abstract

Abstract Background Forward with Dementia is a co-designed campaign to improve communication of dementia diagnosis and post-diagnostic support.Methods Webinars, a website, social and traditional media, and promotions through project partners were used to disseminate campaign messages to health and social care professionals (primary audience) and people with dementia and carers (secondary audience). The campaign ran between October 2021 and June 2022, with 3-months follow-up. The RE-AIM framework was used for process evaluation. Measurements included surveys and interviews, a log of activities and engagements, and Google Analytics.Results There were 28,460 interactions with campaign activities. More than three-quarters of professionals (n = 63/81) thought webinars were very or extremely helpful. Professionals and people with dementia and carers reported that the website provided appropriate content, an approachable tone, and was easy to use. Following campaign engagement, professionals planned to (n = 77/80) or had modified (n = 29/44) how they communicated the diagnosis and/or provided post-diagnostic information and referrals. Qualitative data suggested that the campaign may have led to benefits for some people with dementia and carers.Conclusions Forward with Dementia was successful in terms of reach, appropriateness adoption and maintenance for professionals, however flow-on impacts on people with dementia are not clear. Targeted campaigns can potentially change health professionals’ management of chronic diseases such as dementia.

Publisher

Research Square Platform LLC

Reference32 articles.

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2. Key components of post-diagnostic support for people with dementia and their carers: A qualitative study;Bamford C;PLoS ONE,2021

3. Further development needed: models of post-diagnostic support for people with dementia;Low LF;Curr Opin Psychiatry,2023

4. Why Australia urgently needs post-diagnostic support and treatment for dementia;Low LF;Aust J Dementia Care,2019

5. Characterising Australian memory clinics: current practice and service needs informing national service guidelines;Naismith SL;BMC Geriatr,2022

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