Experiences of social isolation and loneliness amongst persons with mobility-limiting chronic conditions during the COVID-19 pandemic: a qualitative study.

Abstract

Abstract Study Design: Interpretive descriptive qualitative study Objective: To explore experiences of social isolation and loneliness (SIL) amongst persons with mobility-limiting chronic conditions and how they may have changed with public health restrictions during the COVID-19 pandemic.​ Setting: Canada Methods: Participants completed a semi-structured interview virtually and an online questionnaire. Two researchers transcribed the interviews and conducted thematic analysis. Results: Six males and three females participated (Mage=54y), all of whom had a mobility-limiting chronic condition and reported using a wheelchair. Median UCLA Loneliness Scale score was 45 (IQR = 13). Participants reported experiencing loneliness at times of major life change including onset of disability. There was variability between participants in their reports of SIL during the pandemic (negative, no changes, and positive). Coping strategies reported for SIL included interacting with others via technology/support groups, gathering outdoors, participating in recreational activities, and moving closer to families/more accessible places. Conclusions: Although SIL are familiar experiences to persons with mobility-limiting conditions, we found considerable variability in reports of SIL during the COVID-19 pandemic. Further research should aim to identify individuals who are particularly vulnerable to prolonged SIL and how to reduce the negative health effects post-isolation.