Review of the Ethics, Policies and Regulations of a Global Patient co-Owned Cloud (GPOC)

Author:

Lidstromer Niklas1ORCID,Davids Joe2,ElSharkawy Mohamed3ORCID,Ashrafian Hutan4ORCID,Herlenius Eric1ORCID

Affiliation:

1. Department of Women’s and Children’s Health, Karolinska Institutet, CMM, L8:01, 17176 Stockholm, Sweden; Astrid Lindgren Children’s Hospital, Karolinska University Hospital, Stockholm

2. Imperial College London, South Kensington Campus, London, SW7 2AZ

3. Imperial SOS Charity, London

4. Imperial College London, South Kensington Campus, London, SW7 2AZ; Institute of Global Civilisation, London

Abstract

Abstract Cloud-based personal health records have increased during the last thirty years across the globe. The concept of a Global Patient co-Owned Cloud (GPOC) of personal health records is presented in the GPOC series, containing a systematic review and meta-analysis, a global survey among 100% of the UN member states and a technical sandbox environment. GPOC contains patient co-ownership of personal health records. In the global survey a consensus was seen for GPOC. Here, we review the ethics, policies and regulations relevant for GPOC. Co-ownership and security were partly extracted from a systematic review and meta-analysis of twelve core facets of a GPOC. These two, and ten other properties are covered here with an additional literature review and interview series. This, resulting in a global overview of relevant human rights, ethics, privacy, policy, regulations and integration initiatives by states and organisations, markets, AI integration and future challenges for a GPOC. GPOC might result in a new human right to co-own ones’ personal health information. GPOC could drive development and spread of artificial intelligence for healthcare globally. It may solve the lacking personal health record integration on a global scale. Thus, a decentralised GPOC with consensus from blockchain, may benefit global health.

Publisher

Research Square Platform LLC

Reference50 articles.

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