Abstract
Background: Radiotherapy patients need real-time nursing management due to their high daily mobility to improve the therapeutic effect of radiotherapy and reduce the risk of related adverse reactions and recurrence. In clinical practice, classical nursing methods can only collect part of patients’ follow-up treatment and examination information, and data quality is uneven. Therefore, conducting accurate nursing throughout the entire process is impossible. Hence, construction of a nursing follow-up system based on the patient radiotherapy management database can provide an important basis for whole-process management of cancer patients.
Methods: Based on the ‘Wikipedia data donation’ model and the patient-led medical data sharing mechanism, our team constructed a database of radiotherapy patient information sharing and big data system under the Patient-Hospital-Share architecture, and included head and neck cancer patients who received radiotherapy from January 2022 to January 2023 for precision care. Precision care includes the whole process management platform and follow-up management system, based on the patient’s overall situation, to provide patients with maximum support and personalized care throughout radiotherapy.
Result: Through precision whole-process nursing care, the decline of physical, role, and cognitive function was alleviated, worsening of fatigue symptoms was improved, and pain and gastrointestinal reactions were reduced. Simultaneously, the patient radiotherapy management database contains an online collection of patients' medical data inside and outside the hospital, thus initially opening up a complete medical data chain and transforming the hospital-centered data distribution/collection model into a patient-led medical data sharing model.
Conclusion: Precision nursing can significantly improve quality of life in patients undergoing radiotherapy for head and neck tumors. Furthermore, in this mode, patients can infinitely supplement medical data and realize cross-regional and cross-time data updates to practice a new and standardized whole-process management radiotherapy process and build a new and efficient medical treatment and nursing follow-up system.