Youth Caregivers of Adults in the United States: Prevalence and the Association Between Caregiving and Education

Author:

Miller Katherine E. M.1ORCID,Hart Joanna L.2ORCID,Useche Rosania Mateo,Coe Norma B.3ORCID

Affiliation:

1. Department of Health Policy and Management, Bloomberg School of Public Health; Roger C. Lipitz Center for Integrated Health Care; and Hopkins Economics of Alzheimer's Disease and Services Center, Johns Hopkins University, Baltimore, MD, USA

2. Department of Medical Ethics and Health Policy, Perelman School of Medicine; Leonard Davis Institute; Division of Pulmonary, Allergy, and Critical Care, Department of Medicine; and Palliative and Advanced Illness Research Center, Department of Medicine, University of Pennsylvania, Philadelphia, PA, USA

3. Department of Medical Ethics and Health Policy, Perelman School of Medicine; and Leonard Davis Institute, University of Pennsylvania, Philadelphia, PA, USA;

Abstract

Abstract A growing proportion of individuals adopt family caregiving roles. Family caregivers are the primary providers of long-term care in the United States yet limited federal policy supports exist, despite the known negative impacts of caregiving. There is also limited information about the prevalence of youth/young adult caregivers and the impacts of caregiving at formative ages in the United States. Our objective is to estimate the prevalence of youth caregivers and examine the association of caregiving with educational investments. We use the American Time Use Survey (2013–2019) to identify and describe youth caregivers (aged 15–18) and young adult caregivers (aged 19–22) and compare them with non-caregiving peers. We estimate that there are approximately 1,623,000 youth caregivers and 1,986,000 young adult caregivers, corresponding to 9.2% and 12.7% of these age groups, respectively. However, there is a wide range in the estimated prevalence per year, from approximately 364,000 to 2.8 million youth caregivers and from 353,000 to 2.2 million young adult caregivers, depending on caregiver definition. Unlike adult caregivers, we find that young men and women were nearly equally likely to provide care. We also find that non-White individuals are disproportionately represented as youth caregivers. Compared with non-caregiving peers, both youth and young adult caregivers are less likely to be enrolled in school and, among those enrolled in school, spend significantly less time on educational activities. Considering the association of caregiving among youth/young adults and education, policies supporting youth and young adult caregivers are critical.

Publisher

Duke University Press

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