Psychological experiences of family carers of people with spinal cord injury paraplegia: an explorative qualitative study

Author:

Vithana K.V.G.S.G.1,Asurakkody T.A.2,Perera D.P.3

Affiliation:

1. Karapitiya Teaching Hospital, Sri Lanka

2. University of Colombo, Sri Lanka

3. University of Kelaniya, Sri Lanka

Abstract

Spinal cord injury paraplegia is a significant health problem in Sri Lanka. This study explores the psychological experiences of family carers of people with such a condition. A descriptive phenomenological study was conducted with 17 parent, sibling, spouse and adult carers. Thematic analysis revealed four themes related to: carer emotions regarding the caring process; feelings related to the family member’s condition; beliefs beyond the physical world; and behaviour changes due to psychological distress. The findings will help develop interventions for the psychological needs of Sri Lankan carers and may provide insight into the experiences of similar Asian communities living globally.

Publisher

Bristol University Press

Subject

Public Health, Environmental and Occupational Health,Health Policy,Sociology and Political Science,Health (social science)

Reference43 articles.

1. Caregiver burden: a clinical review;Adelman, R.D.,2014

2. Appuhamy, H.S.D., Munidasa, S.M.P.D., Suriarachchi, J.N., Sirigampala, S.A.N. and Ratnayake, V.S.K. (2016) Proceeding of the 1st World Disability & Rehabilitation Conference, Vol 1, Sri Lanka: International Institute of Knowledge Management, pp 54–56.

3. Spinal cord injury in the emergency context: review of program outcomes of a spinal cord injury rehabilitation program in Sri Lanka;Armstrong, J.C.,2014

4. Coping strategies used by traumatic spinal cord injury patients in Sri Lanka: a focus group study;Arya, S.,2016

5. Caregiver’s burden in rehabilitation of patients with neurological deficits following traumatic spinal cord injury;Balakrishnan, P.,2017

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