Families supporting people with mental health challenges during the COVID-19 pandemic: learnings from a co-designed and co-delivered study

Author:

Walters Caroline1,Solich Hayley2,Lawn Sharon3,McDonald Eileen4,Petrakis Melissa1

Affiliation:

1. Monash University, Australia

2. Mental Health Australia, Australia

3. Lived Experience Australia and Flinders University, Australia

4. National Mental Health Consumer & Carer Forum, Australia

Abstract

The significant demand for and reduction in mental health services during the COVID-19 pandemic resulted in family carers providing higher levels and increased hours of support of increased complexity. Guided conversations within seven co-designed online focus groups with 73 family carers, representing diverse communities and ages, explored the experiences of and desired changes for mental health service provision. Six themes emerged: service users’ experiences; the effects of system failures and service provisions; the impact on carers’ health and well-being; unmet community needs; responsive innovations; and policy and practice recommendations. Co-producing research with families elevated family voices and supported carers in expressing their experiences, needs and rights.

Publisher

Bristol University Press

Reference33 articles.

1. It’s not a race, it’s a marathon! Families living with a young adult suffering from mental illness;Aass, L.,2021

2. ‘The key to this is not so much the technology. It’s the individual who is using the technology’: perspectives on telehealth delivery for autistic adults during the COVID-19 pandemic;Ali, D.,2023

3. Family caregiving during the COVID-19 pandemic in Canada: a mediation analysis;Anderson, S.,2022

4. What do carers of people with psychosis need from mental health services? Exploring the views of carers, service users and professionals;Askey, R.,2009

5. Australian Bureau of Statistics (2020) Psychosocial disability, www.abs.gov.au/articles/psychosocial-disability.

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