Comparable Real-World Patient-Reported Outcomes Data Across Health Conditions, Settings, and Countries: The PROMIS International Collaboration

Author:

Terwee Caroline B.1,Ahmed Sara2,Alhasani Rehab3,Alonso Jordi45,Bartlett Susan J.678,Chaplin John E.9,Cho Juhee10,Choi Heeseung11,Correia Helena12,Efficace Fabio1312,Fischer Felix1415,Glinkowski Wojciech1617,Kang Danbee10,Mercieca-Bebber Rebecca18,Mucsi Istvan19,Oishi Takeko20,Pan Ay-Woan21,Roorda Leo D.22,Rose Matthias141523,Schalet Benjamin D.1,Schmidt Sein24,Tinsley Melissa25,Valderas Jose M.2627,Vilagut Gemma4,Yuan Changrong28,Cella David12

Affiliation:

1. Department of Epidemiology and Data Science, Amsterdam UMC location Vrije Universiteit, Amsterdam, the Netherlands

2. School of Physical and Occupational Therapy, Research Institute McGill University Health Center, Clinical Epidemiology, McGill University, Montreal, Canada

3. Department of Rehabilitation Sciences, College of Health and Rehabilitation Sciences, Princess Nourah Bint Abdulrahman University, Riyadh, Saudi Arabia

4. Health Services Research Group, IMIM-Hospital Mar Research Institute Barcelona, CIBER de Epidemiología y Salud Pública, Instituto de Salud Carlos III (CIBERESP), Madrid, Spain

5. Department of Medicine and Life Sciences, Universitat Pompeu Fabra, Barcelona, Spain

6. Department of Medicine, McGill University, Montreal, Canada

7. Centre for Outcomes Research and Evaluation, Research Institute – McGill University Health Centre, Montreal, Canada

8. Department of Medicine, Johns Hopkins Medicine, Baltimore, Maryland, USA

9. Gothenburg Centre for Person-Centred Care (GPCC), Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

10. Department of Clinical Research Design and Evaluation, SAIHST, Sungkyunkwan University, Seoul, South Korea

11. College of Nursing & Research Institute of Nursing Science, Seoul National University, Seoul, South Korea

12. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA

13. Italian Group for Adult Hematologic Diseases (GIMEMA), Data Center and Health Outcomes Research Unit, Rome, Italy

14. Center for Patient-Centered Outcomes Research, Department of Psychosomatic Medicine, Center for Internal Medicine and Dermatology, Charité – Universitätsmedizin Berlin, Berlin, Germany

15. Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany

16. Center of Excellence “TeleOrto” for Telediagnostics and Treatment of Disorders and Injuries of the Locomotor System, Department of Medical Informatics and Telemedicine, Medical University of Warsaw, Warsaw, Poland

17. Polish Telemedicine and eHealth Society, 03-728 Warsaw, Poland

18. NHMRC Clinical Trials Centre, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia

19. Department of Medicine (Nephrology), University of Toronto, Toronto, Canada

20. Tohoku University Graduate School of Medicine, Sendai, Japan

21. School of Occupational Therapy, College of Medicine, National Taiwan University, Taipei City, Taiwan

22. Amsterdam Rehabilitation Research Center, Reade, Amsterdam, the Netherlands

23. Department of Quantitative Health Sciences, University of Massachusetts Medical School, Worcester, Massachusetts, USA

24. Berlin Institute of Health at Charité – Universitätsmedizin Berlin, Clinical Study Center, Berlin, Germany

25. Agency for Clinical Innovation, New South Wales, Sydney, Australia

26. Centre for Research in Health Systems Performance, National University of Singapore, Singapore, Singapore

27. University of Exeter Medical School, Exeter, United Kingdom

28. Nursing School, Fudan University, Shanghai, China

Publisher

Massachusetts Medical Society

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