Identifying Key Health System Components Associated with Improved Outcomes to Inform the Re-Configuration of Services for Adults with Rare Autoimmune Rheumatic Diseases: A Mixed Methods Study-Reference-Cited by-同舟云学术

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Identifying Key Health System Components Associated with Improved Outcomes to Inform the Re-Configuration of Services for Adults with Rare Autoimmune Rheumatic Diseases: A Mixed Methods Study

Published:2024 Issue: Volume: Page:
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Author:

Hollick Rosemary Jane,James Warren RG,Nicoll Avril,Locock Louise,Black Corri,Dhaun Neeraj,Egan Allyson,Fluck Nicholas,Laidlaw Lynn,Lanyon Peter,Little Mark A.,Luqmani Raashid Ahmed,McBain Maureen,Basu Neil

Publisher

Elsevier BV

Reference30 articles.

1. Bridging the Gap between Health and Social Care for Rare Diseases: Key Issues and Innovative Solutions;R Castro;Rare Diseases Epidemiology: Update and Overview,2017

2. The combined prevalence of classified rare rheumatic diseases is almost double that of ankylosing spondylitis;J Leyens;Orphanet J Rare Dis,2021

3. Long-awaited action on rare diseases;The Lancet;Lancet Rheumatol,2022

4. How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study;A Simpson;Orphanet J Rare Dis,2021

5. Mortality in ANCAassociated vasculitis: ameta-analysis of observational studies;J A Tan;Ann Rheum Dis,2017

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