Bridging Uncertainties

Abstract

The study aims to bridge knowledge gaps by exploring the challenges parents face caring for children with ME/CFS, using their narratives to understand long-term. This approach seeks to uncover parallels, enhancing our understanding of pediatric long-COVID-19 and informing effective caregiving strategies. In the authors' exploration, a comprehensive literature study is the guiding light. A rigorous analysis of existing research illuminates the similarities between long-term COVID-19 and ME/CFS experiences in children. The analysis revealed striking similarities between the caregiving experiences in ME/CFS and long-term COVID-19 cases. Parents' narratives illuminated the relentless nature of these conditions, shedding light on the emotional toll they take. By recognising these parallels, healthcare providers and families can benefit from informed strategies, ultimately improving the quality of care provided to children affected by COVID-19. This research supports a more comprehensive view of pediatric long-term ICU illness, one that considers physical symptoms and psychological and social ones.