Genetic Testing and Protection of Genetic Privacy

Author:

Romeo-Malanda Sergio1,Nicol Dianne2,Otlowski Margaret2

Affiliation:

1. University of Las Palmas de Gran Canaria, Spain

2. University of Tasmania, Australia

Abstract

Progress in the field of biomedical science has made it possible to obtain greater knowledge of the human genome and the nature of genetic disorders. Thanks to these advances, doctors now have the tools to diagnose certain disorders, and to carry out genetic tests to determine increased risks of developing other illnesses and of passing them on to future generations. In addition to the classic single gene disorders (like hemophilia and sickle cell anaemia), susceptibility genes are also being identified for genetically complex diseases, including many types of cancer, Alzheimer’s disease, diabetes and other illnesses (House of Lords, 2009, p. 8). We can look toward a future where genetic test results are an important part of every healthy person’s medical file.

Publisher

IGI Global

Reference55 articles.

1. Academy of Medical Sciences. (2006). Personal Data for Public Good: Using Health Information in Medical Research.

2. AllenA. (1997). Genetic privacy: emerging concepts and values. In RothsteinM. A. (Ed.), Genetic Secrets: Protecting privacy and Confidentiality in the Genetic Era. New Haven, CT: Yale University Press.

3. Australian Government First Stage Response to the Australian Law Reform Commission Report 108. (2009). For Your Information: Australian Privacy Law and Practice. Retrieved from http://www.dpmc.gov.au/privacy/alrc.cfm. Accessed 25 October 2009.

4. Australian Law Reform Commission (ALRC). 2008. For Your Information: Privacy Law and Practice (Report 108).

5. Australian Law Reform Commission and Australian Health Ethics Committee (ALRC/AHEC). (2003). Essentially Yours, the Protection of Human Genetic Information in Australia, Report 96.

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