An Evidence-Based Approach to Augmentative and Alternative Communication Design for Individuals With Cortical Visual Impairment

Author:

Wilkinson Krista M.1ORCID,Elko Lynn R.2,Elko Emma2,McCarty Tara V.1ORCID,Sowers Dawn J.1,Blackstone Sarah3ORCID,Roman-Lantzy Christine4

Affiliation:

1. Department of Communication Sciences and Disorders, The Pennsylvania State University, University Park

2. Self-affiliated, Tamaqua, PA

3. The Bridge School, Hillsborough, CA

4. CVI Resources, Pittsburgh, PA

Abstract

Purpose: This article highlights the contributions of three pillars of an evidence-based practice approach (service providers, researchers, and families/clients) in the development of a framework to offer a way forward for professionals, families, and technology companies to support optimal visual and communication outcomes of individuals with cortical visual impairment (CVI) who use augmentative and alternative communication (AAC). By providing available research findings as well as practical information and lived experiences, the article offers clinical considerations and design features that can lead to addressing the unique needs of these individuals. Method: This article reviews literature concerning what is known about CVI and describes in detail and from multiple viewpoints important features required in AAC systems to support individuals with CVI and enable them to communicate effectively. Results: Components necessary for teams, communication partners, and AAC designers to optimize AAC system design in CVI are presented using external research evidence as internal evidence from lived experience to support their importance. Conclusions: An AAC system design that is tailored to the unique visual processing characteristics in CVI is likely to promote positive communication outcomes. The presentation of the lived experience of an individual who has CVI themselves illustrates the need for individualized assessments and interventions that incorporate and reflect the research presented here. Supplemental Material: https://doi.org/10.23641/asha.23902239

Publisher

American Speech Language Hearing Association

Subject

Speech and Hearing,Linguistics and Language,Developmental and Educational Psychology,Otorhinolaryngology

Reference68 articles.

1. American Speech-Language-Hearing Association. (n.d.). Evidence-based practice. Retrieved December 8 2022 from https://www.asha.org/research/ebp/

2. Understanding Cortical Visual Impairment in Children

3. Exploring visual-graphic symbol acquisition by pre-school age children with developmental and language delays

4. Bernard M. A. (2022 July 26). Recent NIH progress on disability access and inclusion [Blog]. Retrieved December 2022 from https://diversity.nih.gov/blog/2022-07-26-recent-nih-progress-disability-access-and-inclusion

5. Beukelman, D. R., & Light, J. C. (2020). Augmentative & alternative communication: Supporting children and adults with complex communication needs. Brookes.

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