Dementia cafés: recommendations from interviews with informal carers

Author:

Akhtar Farrukh,Greenwood Nan,Smith Raymond,Richardson Angela

Abstract

Purpose Dementia cafés (also known as Alzheimer’s or memory cafés) have been running in the UK since 2000. The purpose of this paper is to report on the recommendations from recent research that interviewed family carers on their experiences of using the cafés. Design/methodology/approach The research was carried out in cafés in and around London, and focussed on informal, unpaid carers’ experiences of using them. In total, 11 carers from five different dementia cafés were interviewed, using semi-structured questionnaires. The results were thematically analysed. Findings The findings showed that carers had an overwhelming appreciation of the cafés and what they offered, but several of the findings led to the recommendations about the recruitment and training of café co-ordinators; how cafés present themselves and their services and how they can offer dedicated support to informal carers. Originality/value These recommendations will be of use to café organisers and commissioners, especially considering the dearth of information currently available in this area.

Publisher

Emerald

Subject

Community and Home Care,Gerontology

Reference23 articles.

1. Health-related quality of life in carers of patients with dementia;Family Practice,2004

2. Does a ‘singing together group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study;Dementia: The International Journal of Social Research & Practice,2011

3. Does befriending by trained lay workers improve psychological well-being and quality of life for carers of people with dementia, and at what cost? A randomised controlled trial;Health Technology Assessment,2008

4. ‘Sustaining place’ – a grounded theory of how informal carers of people with dementia manage alterations to relationships within their social worlds;Journal of Clinical Nursing,2013

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