Exploration of caregiver experience for children with ASD: an in-depth perspective

Abstract

PurposeThis study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.Design/methodology/approachIn this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I©intervention model and its contributions to the parent/caregiver experience.FindingsFindings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.Originality/valueThis exploration reveals insights about the roles of societal structures and the caregiving journey.