Community makers: report on developing an online toolkit for supporting people with dementia to connect during the pandemic and beyond

Abstract

Purpose Community Makers (https://communitymakers.co) is an active UK wide network that evolved rapidly in response to COVID-19 and the negative impact of social isolation and distancing on people and families affected by dementia. The network is led by the Alzheimer’s Society, UK Dementia Research Institute Care Research and Technology Centre and The Association for Dementia Studies, at the University of Worcester. This study aims to investigate what works for whom and why and in what circumstances as a basis for the development of an online toolkit for people supporting people affected by dementia to connect and reconnect during the pandemic and beyond. Design/methodology/approach The development of the toolkit was informed by an iterative approach of engagement with people affected by dementia, learning from a network of community organisations and a rapid realist literature review. Findings Four common factors that combine to make a successful support intervention, regardless of its type, size or location were identified: relationships, purpose, technology and community. The application of the factors, adopted as principles, is illustrated by applying them to three real-world examples. Social implications The main output was the online tool kit, which is a resource of creative ideas to inspire groups with different approaches to digital involvement and help reduce social isolation. Originality/value This report offers new insight, based on identification of four principles, into how people affected by dementia can be supported online and offline during a pandemic and beyond.