The experiences of older carers of people with learning disabilities: “I just carry on with it”

Author:

Forrester-Jones Rachel

Abstract

Purpose Because people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. This study aims to explore the experiences of older carers of people with LD. Design/methodology/approach In total, 16 interviews with older carers were carried out and analysed qualitatively. Findings Three main themes emerged from the data: “transition to retirement is a misnomer”; “impact of caring role”; and “fears for the future”. Originality/value Previous studies have not focussed on the specific experiences of “older” carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided.

Publisher

Emerald

Subject

Psychiatry and Mental health,Clinical Psychology,Developmental and Educational Psychology,Social Psychology,Pshychiatric Mental Health

Reference46 articles.

1. ‘I hope he goes first’: exploring determinants of engagement in future planning for adults with a learning disability living with ageing parents. What are the issues? A literature review;British Journal of Learning Disabilities,2013

2. Older carers of adults with a learning disability confront the future: issues and preferences in planning;British Journal of Social Work,2007

3. Caring for a child with learning disabilities over a prolonged period of time: an exploratory survey on the experiences and health of older parent carers living in Scotland;Journal of Applied Research in Intellectual Disabilities,2014

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