Abstract
With the development of possible therapeutic interventions for people with
dementia there is an increasing realisation among clinical and health service
researchers of the paucity of appropriate outcome measures for people with
dementia and their informal caregivers. The different perspectives on
dementia within the biomedical, psychological and social models of disability
lead to radically different meanings of the concept ‘quality of life’ and
approaches to its assessment. This paper examines these different approaches
and proposes a broad research agenda which is underpinned by two key
principles. First, people with dementia and their informal caregivers should be
involved in the development of usable outcome measures relevant to their
needs and circumstances. Second, the scientific community in partnership
with those directly affected should develop a pluralistic approach to the
assessment of outcome taking account of both the meaning of the condition to
people with dementia and their informal caregivers and cost utility from a
societal perspective.
Publisher
Cambridge University Press (CUP)
Subject
Public Health, Environmental and Occupational Health,Geriatrics and Gerontology,Arts and Humanities (miscellaneous),Social Psychology,Health (social science)
Cited by
58 articles.
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