Database Research: Public and Private Interests

Author:

ÁRNASON VILHJÁLMUR

Abstract

It is often argued that a major tension in bioethics is between protecting the private interests of individuals on one hand and contributing to the common good on the other. In this article I ask how fitting this description is as regards the interest at stake in relation to the issue of consent to participation in population data collections. I raise some doubts about what I take to be two common positions regarding public and private interests in this context. The first is that restricted individual consent protects private interests at the cost of public interest.

Publisher

Cambridge University Press (CUP)

Subject

Health Policy,Issues, ethics and legal aspects,Health (social science)

Cited by 7 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Narrativization of human population genetics: Two cases in Iceland and Russia;Public Understanding of Science;2023-11-08

2. Patient data and patient rights: Swiss healthcare stakeholders’ ethical awareness regarding large patient data sets – a qualitative study;BMC Medical Ethics;2018-03-07

3. Biological or Democratic Citizenship;Bioethics and Biopolitics;2017

4. Introduction;Equitable Access to Human Biological Resources in Developing Countries;2015-07-18

5. Clarifying ethical responsibilities in pediatric biobanking;AJOB Empirical Bioethics;2015-05-21

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