Integrating community voices in the research continuum: Perspectives on a consultation service

Author:

Evans Crystal D.ORCID,Nanda Joy P.,Ouyang Pamela,Bone Lee,Byiringiro SamuelORCID,Lacanienta CydORCID,Clark Roger,Weston Christine,Han Hae-RaORCID,Terkowitz Mia,Bates-Hopkins Barbara,Galiatsatos Panagis,Xu Ashley Jingzhi,Stevens Sarah,Himmelfarb Cheryl R.

Abstract

Abstract The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016–2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009–2017) to 114 (2020–2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.

Publisher

Cambridge University Press (CUP)

Subject

General Medicine

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