Community scientist program provides bi-directional communication and co-learning between researchers and community members

Author:

Alvarado JessicaORCID,Strong Larkin L.,Buzcu-Guven BirnurORCID,Thompson Leonetta B.,Cantu Erica,Carrier Chelsea C.,Chukwu Chiamaka D.,Harris Cassandra L.,Melendez Luz K.,Roberson Crystal L.,Ross Angela M.,Russell Sophia C.,Sanchez Pablo,Tahanan AmiraliORCID,Zdenek Blair C.,Reininger Belinda M.,McNeill Lorna H.

Abstract

Abstract Community involvement in research is key to translating science into practice, and new approaches to engaging community members in research design and implementation are needed. The Community Scientist Program, established at the MD Anderson Cancer Center in Houston in 2018 and expanded to two other Texas institutions in 2021, provides researchers with rapid feedback from community members on study feasibility and design, cultural appropriateness, participant recruitment, and research implementation. This paper aims to describe the Community Scientist Program and assess Community Scientists' and researchers' satisfaction with the program. We present the analysis of the data collected from 116 Community Scientists and 64 researchers who attended 100 feedback sessions, across three regions of Texas including Northeast Texas, Houston, and Rio Grande Valley between June 2018 and December 2022. Community Scientists stated that the feedback sessions increased their knowledge and changed their perception of research. All researchers (100%) were satisfied with the feedback and reported that it influenced their current and future research methods. Our evaluation demonstrates that the key features of the Community Scientist Program such as follow-up evaluations, effective bi-directional communication, and fair compensation transform how research is conducted and contribute to reducing health disparities.

Publisher

Cambridge University Press (CUP)

Subject

General Medicine

Reference11 articles.

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