A Portuguese trial using dignity therapy for adults who have a life-threatening disease: Qualitative analysis of generativity documents

Author:

Julião MiguelORCID,Sobral Maria Ana,Johnston Bridget,Lemos Ana Raquel,Almeida Sara,Antunes BárbaraORCID,Dönmez Çiğdem Fulya,Chochinov Harvey Max

Abstract

Abstract Objectives Dignity therapy (DT) is a brief, individualized intervention, which provides terminally ill patients with an opportunity to convey memories, essential disclosures, and prepare a final generativity document. DT addresses psychosocial and existential issues, enhancing a sense of meaning and purpose. Several studies have considered the legacy topics most frequently discussed by patients near the end of life. To date, no Portuguese study has done that analysis. Method We conducted a qualitative analysis of 17 generativity documents derived from a randomized controlled trial (RCT). Inductive content analysis was used to identify emerging themes. Results From the 39 RCT participants receiving DT, 17 gave consent for their generativity document to undergo qualitative analysis. Nine patients were female; mean age of 65 years, with a range from 46 to 79 years. Seven themes emerged: “Significant people and things”; “Remarkable moments”; “Acknowledgments”; “Reflection on the course of life”; “Personal values”; “Messages left to others”; and “Requests and last wishes”. Significance of results Generativity document analysis provides useful information for patients nearing death, including their remarkable life moments and memories, core values, concerns, and wishes for their loved ones. Being conscious of these dominant themes may allow health providers to support humanized and personalized care to vulnerable patients and their families, enhancing how professionals perceive and respond to personhood within the clinical setting.

Publisher

Cambridge University Press (CUP)

Subject

Psychiatry and Mental health,Clinical Psychology,General Medicine,General Nursing

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