Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation

Author:

Hui AdaORCID,Rennick-Egglestone Stefan,Franklin Donna,Walcott Rianna,Llewellyn-Beardsley Joy,Ng Fiona,Roe James,Yeo Caroline,Deakin Emilia,Brydges Sarah,Penas Moran Patricia,McGranahan Rose,Pollock Kristian,Thornicroft Graham,Slade Mike

Abstract

Background Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal characteristics and social circumstances. This study aimed to investigate sources of institutional injustice and their effects on marginalised people with experience of mental health problems. Methods Semi-structured interviews were conducted with 77 individuals from marginalised groups with experience of mental health problems, including psychosis, Black, Asian and minority ethnic (BAME) populations, complex needs and lived experience as a work requirement. These were analysed inductively enabling sensitising concepts to emerge. Findings Three processes of institutional injustice were identified: not being believed because of social status and personal backgrounds; not being heard where narratives did not align with dominant discourses, and not being acknowledged where aspects of identity were disregarded. Harmful outcomes included disengagement from formal institutions through fear and mistrust, tensions and reduced affiliation with informal institutions when trying to consolidate new ways of being, and damaging impacts on mental health and wellbeing through multiple oppression. Conclusions Institutional injustice perpetuates health inequalities and marginalised status. Master status, arising from dominant discourses and heuristic bias, overshadow the narratives and experiences of marginalised people. Cultural competency has the potential to improve heuristic availability through social understandings of narrative and experience, whilst coproduction and narrative development through approaches such as communities of practice might offer meaningful avenues for authentic expression.

Funder

National Institute for Health Research

Center for Mental Health and Substance Abuse, University of South-Eastern Norway

The NIHR Nottingham Biomedical Research Centre

The Economic and Social Research Council

National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research

Care South London at King’s College London NHS Foundation Trust

National Institute of Mental Health of the National Institutes of Health

UK Medical Research Council

Indigo Partnership

NIHR Applied Research Collaboration East Midlands

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

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