Impact of Open Data Policies on Consent to Participate in Human Subjects Research: Discrepancies between Participant Action and Reported Concerns

Author:

Cummings Jorden A.,Zagrodney Jessica M.,Day T. Eugene

Publisher

Public Library of Science (PLoS)

Subject

Multidisciplinary

Reference37 articles.

1. Holdren J. Memorandum for the heads of executive departments and agencies: Increasing access to the results of federally funded scientific research. Office of Science and Technology Policy. 2013. Available: http://www.whitehouse.gov/sites/default/files/microsites/ostp/ostp_public_access_memo_2013.pdf. Accessed 2014 Apr 15.

2. The Open Knowledge Foundation: Open data means better science;JC Molloy;PLoS Bio,2011

3. Open data: Empowering the empowered of effective data use for everyone?;MB Gurstein;First Monday,2011

4. GlaxoSmithKline opens the door on clinical data sharing;C Harrison;Nat Rev Drug Discov,2012

5. Ushering in a new era of open science through data sharing;JS Ross;JAMA,2013

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