The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET-Reference-Cited by-同舟云学术

The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET

Published:2022-05-18 Issue:5 Volume:40 Page:3-11
ISSN:1593-098X
Container-title:Clinical and Experimental Rheumatology
language:en
Short-container-title:

Author:

Talarico Rosaria¹,Aguilera Silvia²,Alexander Tobias³,Amoura Zahir⁴,Andersen Janette⁵,Arnaud Laurent⁶,Avcin Tadej⁷,Marsal Barril Sara⁸,Beretta Lorenzo⁹,Bombardieri Stefano¹⁰,Bortoluzzi Alessandra¹¹,Bouillot Coralie¹²,Bulina Inita¹³,Burmester Gerd R.³,Cannizzo Sara¹,Cavagna Lorenzo¹⁴,Chaigne Benjamin¹⁵,Cornet Alain⁵,Corti Paolo¹⁶,Costedoat-Chalumeau Nathalie¹⁵,Dāvidsone Zane¹⁷,Doria Andrea¹⁸,Fenech Carol¹⁹,Ferraris Alessandro²⁰,Fischer-Betz Rebecca²¹,Fonseca João Eurico²²,Frank Charissa²³,Gaglioti Andrea¹,Galetti Ilaria²⁴,Guimarães Vera²⁵,Hachulla Eric²⁶,Holmner Monica²⁴,Houssiau Frederic²⁷,Iaccarino Luca¹⁸,Jacobsen Søren²⁸,Limper Maarten²⁹,Malfait Fransiska³⁰,Mariette Xavier³¹,Marinello Diana¹,Martin Thierry³²,Matthews Lisa¹⁶,Matucci-Cerinic Marco³³,Meyer Alain⁶,Milas-Ahić Jasminka³⁴,Moinzadeh Pia³⁵,Montecucco Carlomaurizio¹⁴,Mouthon Luc¹⁵,Müller-Ladner Ulf³⁶,Nagy György³⁷,Patarata Eunice³⁸,Pileckyte Margarita³⁹,Pruunsild Chris⁴⁰,Rednic Simona⁴¹,Romão Vasco C.²²,Schneider Matthias²¹,Scirè Carlo Alberto⁴²,Smith Vanessa⁴³,Sulli Alberto⁴⁴,Tamirou Farah²⁷,Tani Chiara¹,Taruscio Domenica⁴⁵,Taulaigo Anna V.³⁸,Tincani Angela⁴⁶,Ticciati Simone¹,Turchetti Giuseppe⁴⁷,van Hagen P. Martin⁴⁸,van Laar Jacob M.²⁹,Viera Ana⁴⁹,de Vries-Bouwstra Jeska K.⁵⁰,Zschocke Johannes⁵¹,Cutolo Maurizio⁴⁴,Mosca Marta⁵²

Affiliation:

1. Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, Pisa, Italy.

2. Spanish Association for Antiphospholipid Syndrome (SAF España), Elche, Spain.

3. Department of Rheumatology and Clinical Immunology, Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health, Berlin, Germany.

4. Department of Internal Medicine, Hospital Pitié-Salpêtrière, Assistance Publique Hôpitaux de Paris, French National Referral Center for SLE and APS, Paris, France.

5. Lupus Europe, Brussels, Belgium.

6. Service de rhumatologie, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Auto-immunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.

7. Department of Allergology, Rheumatology and Clinical Immunology, University Children’s Hospital, University Medical Centre Ljubljana, Ljubljana, Slovenia.

8. Reumatología, Hospital Universitari de Vall Hebron, Barcelona, Spain.

9. Referral Center for Systemic Autoimmune Diseases, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico di Milano, Italy.

10. University of Pisa, Italy.

11. Department of Medical Sciences, Rheumatology Section, University of Ferrara, Azienda Ospedaliero-Universitaria Sant’Anna di Cona, Ferrara, Italy.

12. Sjögren Europe, Bienne, Switzerland.

13. Department of Internal Diseases, Rheumatology Centre, Paul Stradins Clinical University Hospital, Riga, Latvia.

14. Department of Rheumatology, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.

15. Service de Médecine Interne, Hôpital Cochin, Centre de Référence Maladies Systémiques Autoimmunes Rares d’Ile de France, Assistance Publique-Hôpitaux de Paris (AP-HP), Université de Paris, France.

16. Relapsing Polychondritis Awareness and Support, Worcester, UK.

17. Departement of Paediatrics, Riga Stradiņš University (RSU), Riga, Latvia.

18. Rheumatology Unit, Department of Medicine, University of Padova, Italy.

19. Mater Dei Hospital, Msida, Malta.

20. Medical Genetics Laboratory, Molecular Medicine Department, San Camillo Forlanini Hospital, Sapienza University, Rome, Italy.

21. Department of Rheumatology, University Hospital Düsseldorf, Heinrich-Heine-University Düsseldorf, Germany.

22. Rheumatology Department, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, Lisbon Academic Medical Centre and Rheumatology Research Unit, Instituto de Medicina Molecular, Faculdade de Medicina, Universidade de Lisboa, Portugal.

23. Flemish Association for Hereditary Connective Tissue Disorders, Koersel, Belgium.

24. Federation of European Scleroderma Associations (FESCA), Milan, Italy.

25. Liga Portuguesa Contra as Doenças Reumáticas, Lisbon, Portugal.

26. Département de Médecine Interne et Immunologie Clinique, Centre de Référence des Maladies Systémiques et Auto-Immunes Rares du Nord-Ouest (CERAINO), LIRIC, INSERM, Université de Lille, CHU Lille, France.

27. Department of Rheumatology, Cliniques Universitaires Saint-Luc, Brussels, Belgium.

28. Copenhagen Lupus and Vasculitis Clinic, Rigshospitalet, Copenhagen, Denmark.

29. Department of Rheumatology and Clinical Immunology, University Medical Center Utrecht, Utrecht University, The Netherlands.

30. Center for Medical Genetics, Ghent University Hospital and Department for Biomolecular Medicine, Ghent University, Ghent, Belgium.

31. Université Paris-Saclay, INSERM, CEA, Centre de recherche en Immunologie des infections virales et des maladies auto-immunes; AP-HP, Hôpital Bicêtre, Rheumatology Department, Le Kremlin Bicêtre, France.

32. Service d’Immunologie Clinique, Hôpitaux Universitaires de Strasbourg, Centre National de Référence des Maladies Systémiques et Autoimmunes Rares Grand-Est Sud-Ouest (RESO), Strasbourg, France.

33. Department of Experimental and Clinical Medicine, University of Florence, and Division of Rheumatology AOUC, Florence, and Unit of Immunology, Rheumatology, Allergy and Rare Diseases (UnIRAR), IRCCS San Raffaele Hospital, Milan, Italy.

34. Department of Rheumatology, Clinical Immunology and Allergology, University Hospital Osijek, Croatia.

35. Department of Dermatology, Universitätsklinikum, Cologne, Germany.

36. Department of Rheumatology and Clinical Immunology, Kerckhoff Klinik, Justus Liebig University of Giessen, Bad Nauheim, Germany.

37. Department of Rheumatology and Clinical Immunology, Department of Internal Medicine and Oncology, Semmelweis University, Budapest, Department of Genetics, Cell and Immunobiology, Semmelweis University, Budapest, and Heart and Vascular Centre, Semmelweis University, Budapest, Hungary.

38. Auto-immune Disease Unit, Hospital de Curry Cabral, Centro Hospitalar de Lisboa Central, EPE, Lisbon, Portugal.

39. Department of Rheumatology, Hospital of Lithuanian University of Health Sciences, Kaunas, Lithuania.

40. Children’s Clinic, Tartu University Hospital, Tartu, Estonia.

41. Department of Rheumatology, Emergency County Teaching Hospital, Cluj-Napoca, Romania.

42. School of Medicine and Surgery, University of Milano-Bicocca, Milan, Italy.

43. Department of Rheumatology, Ghent University Hospital Department of Internal Medicine, Ghent, Belgium, Unit for Molecular Immunology and Inflammation, VIB Inflammation Research Centre (IRC), Ghent, Belgium.

44. Research Laboratory and Academic Division of Clinical Rheumatology, Department of Internal Medicine, IRCCS Polyclinic Hospital San Martino, University of Genoa, Italy.

45. National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy.

46. Rheumatology and Clinical Immunology Unit, ASST-Spedali Civili and University of Brescia, Italy.

47. Institute of Management, Scuola Superiore Sant’Anna, Pisa, Italy.

48. Department of Internal Medicine and Immunology, Erasmus MC, Rotterdam, Netherlands.

49. Liga Portuguesa Contra as Doenças Reumáticas, Núcleo Síndrome de Sjögren, Lisbon, Portugal.

50. Department of Rheumatology, Leiden University Medical Center, Leiden, the Netherlands.

51. Institute of Human Genetics, Medical University of Innsbruck, Austria.

52. Rheumatology Unit, Azienda Ospedaliero Universitaria Pisana, and Rheumatology Unit, University of Pisa, Italy. marta.mosca@unipi.it, ern.reconnet@ao-pisa.toscana.it

Publisher

Clinical and Experimental Rheumatology

Subject

Immunology,Immunology and Allergy,Rheumatology

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